Data Access & Tools
TriNetX Self Service Tool: Intuitive query builder helping researchers, explore data, build cohorts and compare outcomes
Data Liaison Directory: Search the directory for help with your data driven research and analysis
Data Request: Request Clinical Data for Research
Electronic Medical Record Search Engine (EMERSE): Software that helps researchers accurately find and extract important patient details
Specialized & Transformative Datasets
Transformative Datasets: Explore transformative datasets
Research Networks: Explore research networks
Data Details & Structure
Data Enclave: Storage for clinical research data that connect to HPC and IDAS
Data Tiers: Review the different pricing models for the data menu
Data Tier Data Dictionary: Review the data menu of the types of data available
Data Dictionaries: Review data dictionaries available for the data
Enterprise Data Warehouse for Research (EDW4R): High level of data infrastructure
Governance & Compliance
External Data Sharing: Learn more about external data sharing requests
Data Attestation: Learn more about the data attestation
TriNetX Self Service Tool
TriNetX with University of Iowa Health Care provides researchers with the ability to securely explore limited, de-identified data from the Electronic Health Record. This is a web-based platform that allows the user to specify inclusion and exclusion criteria to find populations of interest. This tool is most useful for identification of patient cohorts for preparation to research.
ICTS provides TriNetX at no cost to University of Iowa Faculty, Staff and Students
Self Service Tool
| TriNetX | SlicerDicer |
Who can access? | Any University of Iowa faculty, staff, or student who is doing clinical research | Anyone with access to Epic |
Date Range of the data | 1/1/2010 to present | 0 |
Refresh cycle | Weekly | Nightly |
Types of data | Demographics, diagnoses, procedures, medications, labs, vitals, visits, dental, oncology | Many different data models and data types |
Ability to access identifiable data | Yes, with assistance from the ICTS Biomedical Informatics Core | For clinical access, you can see data for your patients For research:
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Data Liaison Directory
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| Name | Role | College | Keywords |
| Asher Hoberg | Co-Lead Data Access Team | ICTS | Primary Liaison Medicine |
| Tara Carr | Staff Data Liaison | ICTS | Secondary Liaison Medicine |
| Donna Santillan | Faculty Data Liaison | CCOM | Primary Liaison Medicine, Intergenerational Knowledgebase |
| Brian Gryzlak | Staff Data Liaison | COPH | Primary Liaison College of Public Health, PCORNet |
| Ryan Carnahan | Faculty Data Liaison | COPH | Primary Liaison College of Public Health, |
| Mary Sarrazin | Faculty Data Liaison | CCOM | Primary Liaison Medicine |
| Scott Egerton | Staff Data Liaison | COP | Primary Liaison Pharmacy |
| Chuck McBrearty | Faculty Data Liaison | COD | Primary Liaison College of Dentistry, BigMouth, Dental Medicial Datamart |
| Jacob Michaelson | Faculty Data Liaison | CCOM | Primary Liaison Medicine |
| Karen Dunn Lopez | Faculty Data Liaison | CON | Primary Liaison Nursing, Nursing Care Dataset |
| Cole Chapman | Faculty Data Liaison | COP | Primary Liaison Pharmacy |
| Erliang Zeng | Faculty Data Liaison | COD | Primary Liaison Dentistry |
| Jessica Wolf | Staff Data Liaison | CON | Primary Liaison Nursing |
| Brad McDowell | Staff Data Liaison | CCOM | Primary Liaison Cancer Center |
| Robert Holmes | Staff Data Liaison | ICTS | Secondary Liaison Medicine |
| Andreas Wahle | Ad-Hoc Faculty Data Liaison | COE | Primary Liaison Engineering, Imaging |
| Patrick Fan | Faculty Data Liaison | COB | Primary Liaison Business |
| Jacob Oleson | Faculty Data Liaison | COPH | Wellmark Respository |
| Guadalupe Canahuate | Faculty Data Liaison | COE | Primary Liaison Engineering |
| Brian Heil | Staff Data Liaison | COB | Primary Liaison Business |
| Kishlay Jha | Faculty Data Liaison | COE | Primary Liaison Engineering, Imaging |
| Alberto Segre | Faculty Data Liaison | CLAS | Primary Liaison College of Liberal Arts and Sciences |
| Jacob Michaelson | Faculty Data Liaison | CCOM | Primary Liaison Medicine, Neurodevelopmental Registry |
Data Request
This service provides access to clinical data for scientific research from our electronic health record (EHR) and Enterprise Data Warehouse or Research (EDW4R).
Electronic Medical Record Search Engine (EMERSE)
EMERSE (Electronic Medical Record Search Engine) is software that helps researchers accurately find important patient details like diagnoses, medications, procedures, and complications from clinical notes.
ICTS-BMI can use this tool to identify computable phenotypes built on these unstructured data elements. EMERSE is an information retrieval tool.
Data Tiers
View Tiers
Data Tier | Tier 0 | Tier 2 | Tier 3 | Tier 4 | Tier 5 |
Description | Self Service Tool |
Self Service informed data pull |
Self Service informed data pull
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Custom tailored | Collaboratively developed data resource |
Data Includes | Counts Only | Retrospective coded data, limited data set (Dates identified)
| Identified Demographics
| Data Mapped to a Data Model | Built to specification. |
Data Architect Resources | None | $ | $ | $$$$ | $$$$$ |
Time to get data | None | O | O | OOOO | OOOOO |
Use case | Feasibility | Retrospective analysis | Chart review, study recruitment | Complex analysis |
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Data Tier Data Dictionary - Coming Soon
Data Dictionaries
Explore database objects, data lineage, profiling, and documentation.
Data Enclave
This computational resource provides storage appropriate for use with campus tools Argon (HPC) and Interactive Data Analytics Service (IDAS) when using University of Iowa Health Care clinical data.
Enterprise Data Warehouse for Research (EDW4R)
The backbone infrastructure for real-world data in clinical and translational science, the EDW4R contains data from electronic health record systems and other sources. Best practices for EDW4R’s continue to evolve. Benefits of EDW4R include more effective and efficient clinical and translational science support through access to EHR data curated by informatics experts to facilitate research.
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Transformative Datasets
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Transformative Data Sets | Description | Status | Lead & Champion |
Intergenerational Health Knowledgebase (IHK) | This datamart is a collaboration between Neonatal, Epidemiology, and OB-GYN research groups to come up with a core set of mother/baby/pregnancy information that would be across these groups for research | Live | Donna Santillan |
Neurodevelopmental Registry (NDVR) | Provides a comprehensive set of data and information on UIHC patients who are at increased risk for mental illness and to understand outcomes for this population | Live | Jake Michaelson |
Dental Medical Data Mart (DMDM) | Integration of UI dental data captured in axiUm with UI clinical data (Epic) – accessible via TriNetX. This datamart is also integrated with NAACCR and SSDMF data sources. | Live | Ehrliang Zeng , Chuck McBrearty |
Nursing Care Dataset (NCD) | Will provide a comprehensive set of data and information on nursing delivered care and care outcomes mapped to NIC, NOC, and NANDA concepts | Piloting | Karen Dunn Lopez |
Cochlear Implant Knowledgebase (CIP50) | A collaboration between Otolaryngology, Psychological and Brain Sciences to integrate data across multiple research projects into a single data resource. This data mart will contain integrated information regarding research study details, research design, comprehensive information on research participants, demographics | Piloting | Bob McMurray, Camille Dunn Johnson, Jake Oleson |
SDOH Knowledgebase |
| In development | Martha Carvour, Charisse Madlock, Donna Santillan |
Oncology Knowledge Base |
| Planning | Ken Nepple |
SDOH Knowledgebase |
| Planning | Martha Carvour, Charisse Madlock, Donna Santillan |
Research Networks
Research Collaborative Networks
| Network | Description | Video available w/Hawkid | Lead & Champion |
| Greater Plains Collaborative (GPC) PCORNET | The Greater Plains Collaborative (GPC) Iowa Research Core provides leadership for the University of Iowa’s participation in a network of 12 leading medical centers in eight states committed to a shared vision of improving healthcare delivery through ongoing learning, adopting of evidence-based practices, and active research dissemination. The National Patient-Centered Clinical Research Network (PCORNET) is a large, interconnected network of healthcare systems and researchers taht aims to improve healthcare and advance medical knowledge by facilitating patient-centered outcomes research. | IHDR Seminar: Practical Guide to Using Real World Data from PCORnet | Betsy Chrischilles, Brian Gryzlak |
| TriNetX Research | The TriNetX company partners with leading healthcare organizations around the world to bring together the most comprehensive, privacy-compliant real-world data network. TriNetX with University of Iowa Health Care provides researchers with the ability to securely explore limited, de-identified data from the Electronic Health Record. This is a web-based platform that allows the user to specify inclusion and exclusion criteria to find populations of interest. This tool is most useful for identification of patient cohorts for preparation to research. | IHDR Seminar: Jump Start your Research using TriNetX Analytics | Heath Davis, Asher Hoberg |
| National COVID Cohort Collaborative (N3C) | National COVID Cohort Collaborative (N3C) is a collaboration among the NCATS-supported Clinical and Translational Science Awards (CTSA) Program hubs, distributed clinical data networks (PCORnet, OHDSI, ACT, TriNetX), and other partner organizations, with overall stewardship by NIH’s National Center for Advancing Translational Sciences (NCATS). The N3C aims to improve the efficiency and accessibility of analyses with COVID-19 clinical data, expand our ability to analyze and understand COVID, and demonstrate a novel approach for collaborative data sharing. | Heath Davis | |
| Data Collaborative Research Network (DCRN) | To unlock and exchange corporate data for public good, new types of public private partnerships are emerging: Data Collaboratives. The Data Collaboratives Research Network aims to connect researchers from around the globe working to deepen our understanding of how Data Collaboratives work (or don't work) and translate those insights into practical recommendations moving forward. | Heath Davis, Asher Hoberg | |
| ORIEN | The Oncology Research Information Exchange Network (ORIEN) is a national initiative among leading cancer centers that promotes collaboration to drive research and discovery of personalized treatments for cancer. | IHDR Seminar: Using Data from the ORIEN Research Network | George Weiner , Kristen Coleman |
| Cosmos | Cosmos is a dataset created in collaboration with a community of health systems using Epic and is designed to improve patient care. | Jim Blum , Pinkrose Hamilton | |
| All of Us Research Hub | The All of Us Research Program is one of the largest biomedical data resources of its kind. The Research Hub is home to All of Us data, research tools, and research projects. | IHDR Seminar: All of Us Research Program | Alejandro Comellas, Charisse Madlock, Heath Davis |
| BigMouth Dental Data Repository | The BigMouth Dental Data Repository is a comprehensive database of electronic health records provided by dental schools in a partially de-identified manner. Multiple, major dental schools are currently participating with Iowa. This repository can be used for high-powered research using information collected from each of the participating institutions, and is a promising avenue for big data research. | IHDR Seminar: BigMouth Dental Repository | Chuck McBrearty, Ehrliang Zeng |
| Wellmark Data Repository | The partnership between Wellmark and the Center for Public Health Statistics (CPHS) has provided many years of support to members of the UI research community involved in research based on health claims data. In addition to investigator-driven research, the Wellmark Data Repository may also be used for appropriate educational purposes of students. | IHDR Seminar: Use of the Wellmark Data Repository | Jacob Oleson |
External Data Sharing
A UI Health Care process to review projects that share Health Care data outside of the Health Care environment. This review process involves:
Checking for consistent language regarding the sharing between contracting, IRB, and the external data sharing form
Ensuring appropriate documents have been routed to the appropriate UI contracting organizations
Security review of third-party applications for data transfer or storage
Confirming sharing is aligned with institutional and federal policies
Data Attestation
The Attestation Data Access Agreement is a legal document between the researcher and the University of Iowa for the secondary use of UI Health Care clinical data for research.
The primary use of UI Health Care clinical data is for clinical care. To be able to use UIHC clinical data for research purposes, researchers must attest and complete the requirements outlined below