Data Access & Tools

TriNetX Self Service Tool: Intuitive query builder helping researchers, explore data, build cohorts and compare outcomes

Data Liaison Directory: Search the directory for help with your data driven research and analysis

Data Request: Request Clinical Data for Research

Electronic Medical Record Search Engine (EMERSE): Software that helps researchers accurately find and extract important patient details

Specialized & Transformative Datasets

Transformative Datasets: Explore transformative datasets

Research Networks: Explore research networks

Data Details & Structure

Data Enclave: Storage for clinical research data that connect to HPC and IDAS

Data Tiers: Review the different pricing models for the data menu

Data Tier Data Dictionary: Review the data menu of the types of data available

Data Dictionaries: Review data dictionaries available for the data

Enterprise Data Warehouse for Research (EDW4R): High level of data infrastructure

Governance & Compliance

External Data Sharing: Learn more about external data sharing requests

Data Attestation: Learn more about the data attestation

TriNetX Self Service Tool

TriNetX with University of Iowa Health Care provides researchers with the ability to securely explore limited, de-identified data from the Electronic Health Record. This is a web-based platform that allows the user to specify inclusion and exclusion criteria to find populations of interest. This tool is most useful for identification of patient cohorts for preparation to research. 

ICTS provides TriNetX at no cost to University of Iowa Faculty, Staff and Students 

TriNetX Sign In

Self Service Tool

 

TriNetX 

SlicerDicer 

Who can access? 

Any University of Iowa faculty, staff, or student who is doing clinical research 

Anyone with access to Epic 

Date Range of the data 

1/1/2010 to present 

0 

Refresh cycle 

Weekly 

Nightly 

Types of data 

Demographics, diagnoses, procedures, medications, labs, vitals, visits, dental, oncology 

Many different data models and data types 

Ability to access identifiable data 

Yes, with assistance from the ICTS Biomedical Informatics Core 

For clinical access, you can see data for your patients 

For research: 

  • If there is an Epic research study, you can look at PHI for data related to that study. 

  • If there is not an Epic research study, you can still get access to the line level patient data, but you will need help from the ICTS Biomedical Informatics Core 

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TNX

Data Liaison Directory

View Directory
Name Role  College Keywords 
Asher Hoberg Co-Lead Data Access Team  ICTS Primary Liaison Medicine
Tara Carr Staff Data Liaison ICTS Secondary Liaison Medicine
Donna Santillan Faculty Data Liaison CCOM Primary Liaison Medicine, Intergenerational Knowledgebase
Brian Gryzlak Staff Data Liaison COPH Primary Liaison College of Public Health, PCORNet 
Ryan Carnahan Faculty Data Liaison COPH Primary Liaison College of Public Health, 
Mary Sarrazin Faculty Data Liaison CCOM Primary Liaison Medicine
Scott Egerton Staff Data Liaison COP  Primary Liaison Pharmacy
Chuck McBrearty Faculty Data Liaison COD Primary Liaison College of Dentistry, BigMouth, Dental Medicial Datamart
Jacob Michaelson Faculty Data Liaison CCOM  Primary Liaison Medicine
Karen Dunn Lopez Faculty Data Liaison CON  Primary Liaison Nursing, Nursing Care Dataset
Cole Chapman Faculty Data Liaison COP  Primary Liaison Pharmacy
Erliang Zeng Faculty Data Liaison COD  Primary Liaison Dentistry
Jessica Wolf Staff Data Liaison CON  Primary Liaison Nursing
Brad McDowell Staff Data Liaison CCOM Primary Liaison Cancer Center
Robert Holmes Staff Data Liaison ICTS Secondary Liaison Medicine
Andreas Wahle Ad-Hoc Faculty Data Liaison COE Primary Liaison Engineering, Imaging 
Patrick Fan Faculty Data Liaison COB Primary Liaison Business
Jacob Oleson Faculty Data Liaison COPH Wellmark Respository
Guadalupe Canahuate Faculty Data Liaison COE Primary Liaison Engineering
Brian Heil Staff Data Liaison COB Primary Liaison Business
Kishlay Jha Faculty Data Liaison COE Primary Liaison Engineering, Imaging 
Alberto SegreFaculty Data Liaison CLASPrimary Liaison College of Liberal Arts and Sciences
Jacob Michaelson Faculty Data Liaison CCOM  Primary Liaison Medicine, Neurodevelopmental Registry

Data Request

This service provides access to clinical data for scientific research from our electronic health record (EHR) and Enterprise Data Warehouse or Research (EDW4R).  

Request

Electronic Medical Record Search Engine (EMERSE)

EMERSE (Electronic Medical Record Search Engine) is software that helps researchers accurately find important patient details like diagnoses, medications, procedures, and complications from clinical notes. 

 

ICTS-BMI can use this tool to identify computable phenotypes built on these unstructured data elements. EMERSE is an information retrieval tool. 

BMI Data Consult

Data Tiers

View Tiers

Data Tier 

Tier 0 

Tier 2 

Tier 3 

Tier 4 

Tier 5 

Description 

Self Service Tool 

 

Self Service informed data pull 

 

 

Self Service informed data pull 

 

 

 

Custom tailored 

Collaboratively developed data resource 

Data Includes 

Counts Only 

Retrospective coded data, limited data set 

(Dates identified) 

 

Identified 

Demographics 

 

Data Mapped to a Data Model 

Built to specification. 

Data Architect Resources 

None 

$ 

$ 

$$$$ 

$$$$$ 

Time to get data 

None 

O 

O 

OOOO 

OOOOO 

Use case 

Feasibility 

Retrospective analysis 

Chart review, study recruitment 

Complex analysis 

 

Data Tier Data Dictionary - Coming Soon

Data Dictionaries

Explore database objects, data lineage, profiling, and documentation. 

Request Access
ColumnMetaData
Glossary
Diagram
Lineage

Data Enclave

This computational resource provides storage appropriate for use with campus tools Argon (HPC) and Interactive Data Analytics Service (IDAS) when using University of Iowa Health Care clinical data.

Data Enclave Request

Enterprise Data Warehouse for Research (EDW4R)

The backbone infrastructure for real-world data in clinical and translational science, the EDW4R contains data from electronic health record systems and other sources.  Best practices for EDW4R’s continue to evolve.  Benefits of EDW4R include more effective and efficient clinical and translational science support through access to EHR data curated by informatics experts to facilitate research. 

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IHDR2024

Transformative Datasets

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Transformative Data Sets  

Description 

Status  

Lead & Champion 

Intergenerational Health Knowledgebase (IHK)  

This datamart is a collaboration between Neonatal, Epidemiology, and OB-GYN research groups to come up with a core set of mother/baby/pregnancy information that would be across these groups for research 

Live  

D Santillan  

Neurodevelopmental Registry (NDVR)  

Provides a comprehensive set of data and information on UIHC patients who are at increased risk for mental illness and to understand outcomes for this population 

Live  

J Michaelson  

Dental Medical Data Mart (DMDM)  

Integration of UI dental data captured in axiUm with UI clinical data (Epic) – accessible via TriNetX. This datamart is also integrated with NAACCR and SSDMF data sources. 

Live  

E Zeng / C McBrearty 

Nursing Care Dataset (NCD)  

Will provide a comprehensive set of data and information on nursing delivered care and care outcomes mapped to NIC, NOC, and NANDA concepts 

Piloting 

Dunn Lopez  

Cochlear Implant Knowledgebase (CIP50)  

A collaboration between Otolaryngology, Psychological and Brain Sciences to integrate data across multiple research projects into a single data resource. This data mart will contain integrated information regarding research study details, research design, comprehensive information on research participants, demographics 

Piloting  

B McMurray / C Dunn Johnson// J Oleson 

SDOH Knowledgebase  

 

In development   

Carvour/Madlock/Santillan 

Oncology Knowledge Base  

 

Planning  

K Nepple 

SDOH Knowledgebase  

 

Planning  

Carvour/Madlock/Santillan 

Research Networks

Research Collaborative Networks 
Research Collaborative Networks  Data Model  Lead /Champion 
Greater Plains Collaborative (GPC) PCORNET  PCORNet Chrischilles  / Gryzlak
TriNetX Research  TriNetX  Davis / Hoberg
National COVID Cohort Collaborative (N3C) OMOP  Davis  
Data Collaborative Research Network (DCRN) TriNetX  Davis / Hoberg 
ORIEN  ORIEN  Weiner  / Coleman
Cosmos  Epic   Blum / Hamilton 
All of Us Research Hub OMOP  Comellas / Madlock / Davis 
Big Mouth   i2b2 McBrearty / Zeng

External Data Sharing

A UI Health Care process to review projects that share Health Care data outside of the Health Care environment. This review process involves: 

  • Checking for consistent language regarding the sharing between contracting, IRB, and the external data sharing form

  • Ensuring appropriate documents have been routed to the appropriate UI contracting organizations 

  • Security review of third-party applications for data transfer or storage 

  • Confirming sharing is aligned with institutional and federal policies 

    Workflow Request

Data Attestation

The Attestation Data Access Agreement is a legal document between the researcher and the University of Iowa for the secondary use of UI Health Care clinical data for research. 

The primary use of UI Health Care clinical data is for clinical care. To be able to use UIHC clinical data for research purposes, researchers must attest and complete the requirements outlined below

Attestation Data Access Agreement

Questions?

Email BMI Consulting