The IHDR is a collaborative project with three goals:
Improve understanding & availability of health data on campus.
Build transformative data sets for health science research.
Establish a data enclave and other technologies to enable big data and AI approaches to health and biomedical science
Enterprise Data Warehouse for Research (EDW4R)
The backbone infrastructure for real-world data in clinical and translational science, the EDW4R contains data from electronic health record systems and other sources. Best practices for EDW4R’s continue to evolve. Benefits of EDW4R include more effective and efficient clinical and translational science support through access to EHR data curated by informatics experts to facilitate research.
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Data Enclave
This computational resource provides storage appropriate for use with campus tools Argon (HPC) and Interactive Data Analytics Service (IDAS) when using University of Iowa Health Care clinical data.
Electronic Medical Record Search Engine (EMERSE)
EMERSE (Electronic Medical Record Search Engine) is software that helps researchers accurately find important patient details like diagnoses, medications, procedures, and complications from clinical notes.
ICTS-BMI can use this tool to identify computable phenotypes built on these unstructured data elements. EMERSE is an information retrieval tool.
Data Liaison Directory
View Directory
Name | Role | College | Keywords |
IHDR Co-Director | CCOM |
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IHDR Co-Director | CCOM |
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Asher Hoberg | Co-Lead Data Access Team | ICTS |
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Tara Carr | Staff Data Liaison | ICTS |
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Diva Perez | Transformative Dataset Lead | ICTS |
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Chris Ortman | Lead Data Architect | CCOM |
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Faculty Data Liaison | CCOM |
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Brian Gryzlak | Staff Data Liaison | COPH |
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Faculty Data Liaison | COPH |
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Faculty Data Liaison | CCOM |
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Scott Egerton | Staff Data Liaison | COP |
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Faculty Data Liaison | COD |
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Faculty Data Liaison | CCOM |
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Faculty Data Liaison | CON |
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Faculty Data Liaison | COP |
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Faculty Data Liaison | COD |
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Rhonda DeCook | PCORNET Query Engineer | COPH |
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Faculty Data Liaison | CCOM |
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Jennie Embree* | Staff Data liaison | CON |
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Jessica Wolf | Staff Data Liaison | CON |
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William Keating | Ad Hoc Staff Data Liaison | COD |
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Ad-Hoc Faculty Data Liaison | COM |
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Justin Perez | Data Engineer | ICTS |
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Elaine Dettner | Staff Data liaison | CON |
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An Gie Cech | Data Engineer | ICTS |
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Lucas Van Tol | Systems Engineer | HCIS |
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Staff Data Liaison | CCOM |
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Laura Jacobus* | Ad Hoc Staff Data Liaison | CCOM |
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Ad-Hoc Faculty Data Liaison | CON |
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Ad-Hoc Faculty Data Liaison | CON |
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Faculty Data Liaison | CCOM |
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Faculty Data Liaison | CCOM |
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Faculty Data Liaison | CCOM |
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Ad-Hoc Faculty Data Liaison | CON |
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Gi-Yung Ryu | Data Architect | ICTS |
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Manny Olutunde | Data Engineer | ICTS |
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Joe Spring | REDCap Lead | ICTS |
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Robert Holmes | Staff Data Liaison | ICTS |
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Ad Hoc Staff Data Liaison | CON |
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Ad-Hoc Faculty Data Liaison | CCOM |
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Jordan Gunti | Data Engineer | ICTS |
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Ad-Hoc Faculty Data Liaison | COE |
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Ad-Hoc Faculty Data Liaison | CON |
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Elizabeth Verhage | Ad Hoc Staff Data Liaison | COPH |
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Melissa Curry | Ad Hoc Staff Data Liaison | CCOM |
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Ad Hoc Staff Data Liaison | COPH |
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Ad-Hoc Faculty Data Liaison | CCOM |
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Faculty Data Liaison | COB |
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Faculty Data Liaison | COB |
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Ad-Hoc Faculty Data Liaison | CON |
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Faculty Data Liaison | COPH |
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Faculty Data Liaison | COE |
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Kelsey Steckly | Ad-Hoc Staff Data Liaison | HCCC |
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Staff Data Liaison | COB |
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Ad-Hoc Staff Data Liaison | COPH |
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Faculty Data Liaison | COE |
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Data Request
This service provides access to clinical data for scientific research from our electronic health record (EHR) and Enterprise Data Warehouse or Research (EDW4R).
TriNetX Self Service Tool
TriNetX with University of Iowa Health Care provides researchers with the ability to securely explore limited, de-identified data from the Electronic Health Record. This is a web-based platform that allows the user to specify inclusion and exclusion criteria to find populations of interest. This tool is most useful for identification of patient cohorts for preparation to research.
ICTS provides TriNetX at no cost to University of Iowa Faculty, Staff and Students
Self Service Tool
| TriNetX | SlicerDicer |
Who can access? | Any University of Iowa faculty, staff, or student who is doing clinical research | Anyone with access to Epic |
Date Range of the data | 1/1/2010 to present | 0 |
Refresh cycle | Weekly | Nightly |
Types of data | Demographics, diagnoses, procedures, medications, labs, vitals, visits, dental, oncology | Many different data models and data types |
Ability to access identifiable data | Yes, with assistance from the ICTS Biomedical Informatics Core | For clinical access, you can see data for your patients For research:
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Transformative Datasets
View Data Sets
Transformative Data Sets | Description | Status | Lead & Champion |
Intergenerational Health Knowledgebase (IHK) | This datamart is a collaboration between Neonatal, Epidemiology, and OB-GYN research groups to come up with a core set of mother/baby/pregnancy information that would be across these groups for research | Live | D Santillan |
Neurodevelopmental Registry (NDVR) | Provides a comprehensive set of data and information on UIHC patients who are at increased risk for mental illness and to understand outcomes for this population | Live | J Michaelson |
Dental Medical Data Mart (DMDM) | Integration of UI dental data captured in axiUm with UI clinical data (Epic) – accessible via TriNetX. This datamart is also integrated with NAACCR and SSDMF data sources. | Live | E Zeng / C McBrearty |
Nursing Care Dataset (NCD) | Will provide a comprehensive set of data and information on nursing delivered care and care outcomes mapped to NIC, NOC, and NANDA concepts | Piloting | Dunn Lopez |
Cochlear Implant Knowledgebase (CIP50) | A collaboration between Otolaryngology, Psychological and Brain Sciences to integrate data across multiple research projects into a single data resource. This data mart will contain integrated information regarding research study details, research design, comprehensive information on research participants, demographics | Piloting | B McMurray / C Dunn Johnson// J Oleson |
SDOH Knowledgebase |
| In development | Carvour/Madlock/Santillan |
Oncology Knowledge Base |
| Planning | K Nepple |
SDOH Knowledgebase |
| Planning | Carvour/Madlock/Santillan |
Data Tiers
View Tiers
Data Tier | Tier 0 | Tier 2 | Tier 3 | Tier 4 | Tier 5 |
Description | Self Service Tool |
Self Service informed data pull |
Self Service informed data pull
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Custom tailored | Collaboratively developed data resource |
Data Includes | Counts Only | Retrospective coded data, limited data set (Dates identified)
| Identified Demographics
| Data Mapped to a Data Model | Built to specification. |
Data Architect Resources | None | $ | $ | $$$$ | $$$$$ |
Time to get data | None | O | O | OOOO | OOOOO |
Use case | Feasibility | Retrospective analysis | Chart review, study recruitment | Complex analysis |
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Data Tier Data Dictionary - Coming Soon
Data Dictionaries
Explore database objects, data lineage, profiling, and documentation.
Research Networks
Research Collaborative Networks
Research Collaborative Networks | Data Model | Lead /Champion |
Greater Plains Collaborative (GPC) PCORNET | PCORNet | Chrischilles |
TriNetX Research | TriNetX | Davis |
National COVID Cohort Collaborative (N3C) | OMOP | Davis |
Data Collaborative Research Network (DCRN) | TriNetX | Davis |
ORIEN | ORIEN | Weiner |
Cosmos | Epic | Blum / Hamilton |
All of Us Research Hub | OMOP | Comellas/Madlock/ Davis |
Big Mouth | i2b2 | McBrearty |
External Data Sharing
A UI Health Care process to review projects that share Health Care data outside of the Health Care environment. This review process involves:
Checking for consistent language regarding the sharing between contracting, IRB, and the external data sharing form
Ensuring appropriate documents have been routed to the appropriate UI contracting organizations
Security review of third-party applications for data transfer or storage
Confirming sharing is aligned with institutional and federal policies
Data Attestation
The Attestation Data Access Agreement is a legal document between the researcher and the University of Iowa for the secondary use of UI Health Care clinical data for research.
The primary use of UI Health Care clinical data is for clinical care. To be able to use UIHC clinical data for research purposes, researchers must attest and complete the requirements outlined in the Attestation Data Access Agreement.